Post Tubal Ligation Syndrome

Friday, June 13, 2008

Worsening Symptoms

WARNING - Graphic Post below!

I've suffered with PTLS for nearly seven years now. For the most part, I can handle what life throws at me. However, for the last few months, when my period arrives, it's been pretty bad.

The cramps start up a couple of days before my period arrives. At that point, they're nagging, but not overly bad. The headaches also start, but that's usual for a period anyway. The first two days of my period though, I'm barely able to get out of bed. I suffer terrible cramps, huge blood loss, and to boot, I lose a lot of clots, and we're not talking the tiny ones. We're talking BIG! I can bleed for any length of time from 5 days, to 8 or 9 days. This is actually an improvement from the 12 to 14 days I bled for the first few months after having my tubal.

As for other symptoms that have started showing themselves to me at any time of the month, these are as follows:


These are in addition to the symptoms that I normally have to contend with, such as irritability, depression, and many others on the list. All of these showing themselves at various times during the month, have made me more determined than ever that I will have my Tubal reversed. I just want my 'normal' life back. I want to feel like I used to feel, and not have to worry about whether my period is going to put me on my back for two days.

Post Tubal Ligation Syndrome is a horrible horrible condition. Doctors need to start acknowledging this as a condition, and start informing women that they may suffer from this if they decide to have a Tubal Ligation as a means of Birth Control.

Ciao.
posted by PTLS Sufferer at 11:31 PM

73 Comments:

ok, so I never considered that all these problems I have been having could be from my tubal...never even heard of it. I have a clotting problem and can't take bc so we got a tubal after our 3rd kid in november. my periods came back with a vengence. I used to have light 3day periods, they last over a week now and I can't even leave my house the first two days of it cuz the flow is so HEAVY. and the cramps?!?! lets not even go there!! I also become a phsyco crazy person right before and during my period which never used to happen...horrible moodiness, anger tears...the works I hate it. I have also been consumed with thoughts of death...of me, of my baby...figured it was a version of ppd or something. I am always hot and sweating too, when everyone around me is freezing. I want to talk to my dr about this but I am afraid he will brush me off...since he never mentioned this might happen.

June 22, 2008 at 5:05 PM  

Hello... just stumbled upon your post/blog... I've been researching PTLS. It finally explains what has happened to ME. I had a tubal 17 months ago - 2nd worse decision of my life. I, also, thought my crazy/intrusive thoughts were PPOCD... but now not so sure. Have you found any research on whether the symptoms of PTLS are relieved with a tubal reversal? At this point I would love to get the reversal... and not because I want another baby... but because I would like to have my sanity restored! I have 3 beautiful children who need me... the old me, not this new horrible person who looks like mommy. Thanks for any comments or any redirect.

October 12, 2008 at 5:44 PM  

So I've been having problems for the last 8 months. I had a tubal done following my second c-section. I was amazed at how painful my periods were after the second baby. I thought maybe it was because I didn't go back on birthcontrol. But I don't remember my periods being like this before I went on birth control. I've gone to the dr a few times and the answer was I had ovaries on my cysts, so they put me on birth control, cysts are smaller/gone and I'm still having right sided pelvic pain. I started exercising again and the pain is worse afterwards but they say there is nothing wrong with my c-section scar. I started researching on the internet and found this site and it amazes me how many people are having problems after tubals. If I had known any of this beforehand I would have had my husband get a vasectomy. This is a great site, hopefully someome will start doing some medical research on this.

December 11, 2008 at 3:08 PM  

I'm 39 yrs old and had a TL 8 years ago. I had no idea how much my life would change. Within about 7 months post op I started changing. My once healthy hair is a stringy thin mess, I have tons of facial fuzz I never had before, my sweat changed odors and now I am forced to use prescription strength antiperspirant, severe bleeding and longer periods with crippling cramps and backpain, rash on my chest, memory loss, confusion, anger and rage, 7-9 lb. bloating weight increase 2 wks before period, insomnia, acne, itcy dry vagina, incontinence, bleeding gums, loss of libido, pain in lower right abdomen, loss of enjoyment in my life, the list goes on and on..I have mentioned these symptoms every year to my ob/gyn during my annual check-up but all I get is "It's your age, it's because you've had 3 kids, it's depression" blah blah blah..I can't take it anymore. I need to be taken seriously, I need to get my life back. My husband and kids don't deserve this. I could be so much better but I don't know how to fix it.I'm so angry

March 3, 2009 at 11:57 AM  

Thank you for your blog! It has helped me tremendously. I was starting to lose hope but finding this blog has lifted my spirits. I too have almost half of those symptoms and haven't felt like myself for 8 months now. Everytime I ask about the bleeding I am told it is normal after having a tubal ligation and I knew there was no way that the heavy heavy bleeding and huge blood clots could be normal. I can wear an overnight pad and a super absorbency tampon at the same time and still fill them both in less than two hours! It is terrible. Thank you so much for your help!

March 31, 2009 at 2:14 PM  

I left a comment on here a long time ago (the olson 5) I just have to come back and update. It has now been 17mnths since my tubal and my body is returning to normal. My periods are back to the light 3 day ones, I am not having the horrible hot flashes anymore. My sex drive has even come back...a little;)
I still am ALOT more irratable the week before my period but the rest is getting better.
I am sorry for those of you that have suffered so much longer than I, but I just had to tell my story if there is someone out there that is just starting...there is a CHANCE that you will adjust. I am not promising anything, as evidenced by the other people on here but it does get better(not completely) but better for some!

April 17, 2009 at 2:34 PM  

I am absolutely floored by all of this!! I had a tubal after my son was born in 2004. My periods became much worse, had to leave work to change my clothes, extreme pain etc... I had an ablation done in 2006 which gave me about 1 year of relief. By 2008, I was diagnosed with Adenomyosis, my periods had gotten so bad I needed Vicodin to deal with the pain! I had a partial hysterectomy done, uterus and cervix removed, ovaries left intact. Now, a year later, I am in hormonal hell! Reading this blog and others comments is helping me to understand why!! I've been through the list of antidepressants but still morph into a psycho for a few weeks every month. I truly believe this is a hormonal issue. I am going to see an endocrinologist at the end of the month. I am hoping some type of hormonal replacement therapy is my answer! Wish me luck:)

October 12, 2009 at 6:20 AM  

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March 4, 2010 at 7:49 AM  

Hi, I hope some of you that posted in the last year will follow up with how you are doing. I am in the same boat as most of you and my symptoms from bleeding heavily to horrible moods and hot flashes are about identical. I had a tubal in 2005, which was followed by the worst periods of my life for about a year. Then had an ablation to help that situation. Then the PAIN started. had a horrible doctor who did both those surgeries and was clueless and actually told me that hot flashes really aren't that bad. (Later found out that he has had many complaints against him for numerous things).

Anyway, I was recently referred to a pelvic pain clinic and will see how that goes. Percocet and morphine do not touch the pain I have while on my so called period. It does not happen every month. I have been put into perimenopause. I never know when my period is coming. the last doctor said it could be tubal ligation syndrome. That I might have retrograde bleeding up in the tubes and that is very painful. duh. The only thing to alleviate it is to take out the tubes.

I am on antidepressants and sedatives (at times, so I don't flip out on my family). How is everyone else doing?

March 19, 2010 at 10:35 PM  

Suzanne,
I feelfor you. The pain is atrocious, I know! I had to live on Vicodin plus high doses of Advil to at least be able to get some sleep, forget about working or functioning ormally!! I did an ablation too which helped for about a year and then opted for a hysterectomy. Now i have no more bleeding but have issues with hot flashes, PMS (still have my ovaries) and mood swings like never before. You might want to do some reading on progesterone. I'm not a doctor but I have read that Progesterone can help with the heavy bleeding and pain. Just a thought! Good luck to you!! Maddi

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March 31, 2010 at 10:04 PM  

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從人生中拿走友誼,猶如從生活中移走陽光..................................................

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期待新的內容 感謝你.................................[/url]...............

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August 23, 2010 at 1:26 AM  

Hi Dawn,

I'm writing a story on women who have undergone tubal ligations and am trying to find a subject who regrets the procedure.

Would you please email me? hisofi at gmail dot com.

Thanks!

-S.

October 11, 2010 at 9:57 AM  

Hi Dawn,

I'm writing a story on women who have undergone tubal ligations. Would like the voice of someone who regrets their surgery.

Could you please get in touch asap?

hisofi at gmail dot com

Thanks!

S.

October 11, 2010 at 9:58 AM  

im 21 and i wish i wouldnt have done this i have two babys.
and chose this bc i dont want anymore but i feel like a differant person am always mad and never want sex and its messed up everything with my boyfriend of 7 years he doesnt understand y im not the same. i used to be happy all the time now im often sad and stay away fm people i havent even had a period yet and its been two months on the 17 i have cramping and mood swings all the time.... dont get tubes tied just for ppl who r reserching the tubal ligation it sucks

October 14, 2010 at 8:25 AM  

OMG I don't know if anyone other than me has really read this since oct 2010 but I know exactally what she is going through I got my tubal ligation done in July 2008 after the birth of my 3rd child and I have had NOTHING but problems since I mean the pain and the bleeding and the fatuige is absolutley crazy I'm going next week in to talk with my OB-GYN about getting my tubes untied I want my normal life back the worst part is the doctor didn't even warn me about this when I got my tubes tied I wonder if I could file a lawsuit? best wishes to ALL and hopefully we can all get the problem resolved....

November 6, 2010 at 4:01 PM  

Hello, I know you pain all to well. I have created a Blog abut PTLS and my journey to a reversaL.


http://fittobeuntiedptls.blogspot.com/

February 19, 2011 at 2:00 PM  

Wow! I have been dealing with so many of these symptoms since I had a tubal in 2008 but lately they have been getting worse. The fatigue is affecting my way of life. I can literally sleep All day and still wake up tired. Of course, my husband just thinks I'm lazy. I have also gained a lot of weight and the bloating is unreal! It looks like I'm pregnant and no amount of drinking water seems to help. I'm glad that this isn't something just affecting me and hopefully I can find an answer now. Thanks for posting this!

February 22, 2011 at 2:01 PM  

Hi everyone , I've having PTLS for the past three years, it has affected my health so much. I'm currently been treated for nerve damage ( idiopathic neuropathy ) , horrible menstrual periods, weight gain, lot of libido. And my insurance will no covered the reversal to improve my quality of life because is consider a pre-existing .
I work in the healthcare industry and believe that something should be done. There is no law that can force a physician to notified us about the side effects of this procedure , there are some physicians that don't believe this syndrome really exist.
We are victims, and this procedure is taking away our quality of life.

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March 8, 2011 at 3:59 PM  

I'm so glade I found this site. I've been back and forth to the doctor for a year six months, trying to find out whats wrong with me.Finally at the beginning of this month my doctor sent me to an ob specialist. She ask a few questions and then told me that I was having PTLS. I never heard of this but as I began to read about it, I found out that it was everything I've been dealing with. I am 26 years old and my whole life has been turned upside down. I have been having heavy bleeding, bad cramps and thoughts of death for the first time in my life. I don't know what to do. I'm constantly thinking of suicide. My sex life has went down the drain and I feel like I will never be able to please my husband again. I scream and yell at everyone because of constant moodswings. I have horrible pain and burning in my pelvic area. It feels as if my bones are on fire but its off and on. I have hot flashes,cold chills, and very strong headaches.PTLS has been taking controll of my life and I am going to do everything I can to warn others so they won't have to deal with this. I really wished someone would have warned me.

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November 30, 2011 at 11:57 AM  

This comment has been removed by the author.

December 1, 2011 at 12:42 AM  

I also want my life back. I’m going for hormone test tomorrow; maybe I can take something to feel better. I hope that one day tubal reversal price will go down so I can afford and get my old self back.

January 12, 2012 at 4:08 PM  

Hi, everyone I had a tubal ligation when I was 26 (now 29) and I started having a lot of symptoms I never experienced before, anxiety, crying for no reason feelings of despair mood swing, hot flashes, very painful periods labor like pain. It all started about 17 months after my tubal ligation when I got my period all of this overwhelming feelings came over me like my body went haywire I had thoughts of hurting my self I just could not take it, went to ER 2 times went to see an obgyn and 2 family doctors had blood work done came back normal all doctors wanted to put me on anxiety medication but I declined no one would help me I was so desperate. After about a month and a half my body has slowly started getting back to normal (with no help from any doctors) now every time my period comes I have crying spells mood swing bad cramps I am looking in to having a tubal reversal done I an scare to have to live like this for the rest of my life. It should be ilegal for doctors to do this to you and not inform you that all this could happen I wish I have never done this to myself. I decided to tell my story for other women who might not know this could happen I did not now I thought I was going crazy until I started looking online to find what was wrong with me

February 15, 2012 at 8:47 AM  

Did you ever get your tubal reversed?

April 8, 2012 at 2:50 PM  

Has anyone ever just skipped a period? I skipped last July ('11) completely and it also last month (April '12). I haven't seen it on the symptom list for PTLS but I don't know what else to attribute it to. I'm only 32 so I don't think it's menopause and I've had my tubes tied for 10 years. Otherwise, I'm healthy.

May 4, 2012 at 12:13 PM  

I was thinking about getting my tubes tied but after reading all of the posts I think I'll pass and talk my husband into getting fixed. Pray that all you ladies get some relief from all that your going thru. I'm praying for you all!!!

July 25, 2012 at 9:51 PM  

This has happened to me as well! I had a ligation after my son in 2008 and have been living a nightmare ever since!! I'm a total but aar and monster and kids deserve a great mom I'm not that great!! My husband also takes a lot from me and I'm surpriseed he still wants to be here! Anyway I just noticed I literally have these shooting pains during ovulation! So bad I must crawl off the pot to the room and lay there cringing till they stop! I have told my ogbyn mane times my mood, pain, frustration, night sweats and hot flashes! I also have experienced tremendous digestive upset and constipation! My ogbyn even told me to get a colonoscopy and I did which was normal so after Gavin a crap load of ct scans scopes shoved down my mouth and rear I'm fed up!!! What do I do??? It's so expensive! I would do anything to feel better!!

July 30, 2012 at 6:11 PM  

I have been dealing with these symptoms since my tubal in 2006. I thought it was all in my head still I started reading these comments! I have no libido, have gained about 60 pounds despite not eating poorly, I'm irritatable all the time, and fatigue is crazy! I sometimes done even feel like getting out of bed. As for the reversal, I cannot afford it so I guess ill continue to suffer.

October 15, 2012 at 7:54 PM  

Chris_OH
I had a TL years ago.. maybe 2000. I had bad pain and swelling. For a little while the periods seemed less flow wise but over the last 5 years they have increased dramatically and allot of clotting and unbearable pain and bloating. I feel allot of strange period like pain/aches throughout the month almost like a phantom period. I have noted facial fuzz and even I swear body hair darkening (has anyone else noticed that?). Sex drive--what's that.. I am on antidepressants but still have major mood swings pre period time. Right now I am experiencing pain in my belly button and I don't know what in the heck is causing it--has anyone ever had issue with umbilical hernia? I don't know if that what it is but it would make sense... my TL the dr went thru my belly button and a small incision in the bikini line area. Part of me would go and do the TL again-I don't want children and didn't want to be on bc forever. What have anyones dr's done as a course of treatment for PTLS. thanks for any comments.

November 25, 2012 at 11:46 AM  

oh my goodness! i didn't even know what i was dealing with had a name. thank you for posting this. i had my tubal done in 2005 and just this year... in 2012 started antidepressants. i knew not soon after my tubal that something was different but dealt with it and over the years it got worse and worse. my male doctor told me for so long that my tubal and my symptoms had nothing to do with each other. i recently switched to a female doctor and she immediately put me on antidepressants but all the years i have been dealing with these symptoms i knew something wasn't right. my premenstrual symptoms were getting worse and worse! he told me basically it was all in my head. I can't afford to have this thing reversed so hopefully my therapy and these antidepressants will start me on the road to recovery and feeling like i used to.

November 28, 2012 at 9:42 AM  

Hi, am a knowledge seeker about PTLS. I am also a suffer of PTLS symptoms. I put together a brief survey to see which symptoms of PTLS are the most common. If you wouldn't mind I'd like to post a link here for the survey so other women can share their information. Please know that this is not a medically endorsed survey and is only for the purpose of helping to share information to those us who suffer.

http://www.surveymonkey.com/s/XTW69KG

For anyone who is interested it the results of this survey, please visit the statistics page of www.posttuballigationsyndrome.weebly.com

January 7, 2013 at 10:18 PM  

I can't believe I found this. I have been trying to find out for years what is wrong with me. I had my tubes tied almost 9 years ago and year after year it has just gotten worse. My doctor suggested a hysterectomy and the pill and for 6 months I received Luprin shots. I had come to the conclusion that I was just being a pain and needed to get over it. Im so glad to see that I'm not crazy. I'm not sure that a reversal is going to happen for me but atleast I know now that I'm not alone

January 14, 2014 at 6:20 PM  

I had my tubal ligation done in 2005 and I was 21 at the time with my 3 child. I have PTLS also and am trying to research what to do. Can anyone update if they got a reversal and if it helped.

June 5, 2014 at 10:13 AM  

I had a tubal July 2012 and have not felt the same since. I have horrible PMS for the entire week prior to my period, my cramping and bleeding is off the chart, migraines three times a week, hot flashes are starting. My doctor suggested getting an IUD...That was even worse DON'T DO IT!!! I have gained so much weight I weigh more then I was when I was pregnant last year. So I have been in search of weight loss and I did crossfit for 90 days with no results. Then a friend of mine introduced me to this product and I was resistant at first but thought what the hell I will try it for 30 days. In 3 weeks time I have lost 8 pounds but the best part is some of my symptoms have gone away or are far less noticeable. I started my period three days ago and on day two I realized NO CRAMPING at all!!! Then I realized that the pms was not nearly as bad as it had been...There was no dull achy pain, no lower back pain, no deep depression, less tired. I just wanted to share this because I stumbled upon what seems to be a miracle. I will keep you posted as the months go on. I am so grateful and hope that everyone suffering can get the same relief I have found. Please email me if you want more info at Nsullivanward@gmail.com

June 12, 2014 at 12:24 PM  

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